The Review

Blue Mountains Review - June 7th Edition

Posted On: Tuesday, June 8, 2021

Community News and Events

Blue Mountains Review - June 7th Edition

The Trail of Hope is a one day event taking place to raise awareness and much needed funds for CDKL5 Canada. It will take place on Thursday, June 17th (CDKL5 Awareness Day) on the Georgian Trail in Blue Mountains, Ontario. The Ladly family whose daughter suffers from CDKL5 will push their daughter the length of the Georgian Trail which stretches 34km from Collingwood to Meaford starting at 6am

This will be a long day, and will likely be challenging considering all that goes with caring for an individual with CDKL5.

How can you participate?

1. Join us on the trail. You can cheer us on at trail access points and/or join in and walk with us (socially distanced) for a section of the trail. There will be live updates via our facebook and instagram feeds.

2. Walk with us virtually. If you can't join us in person, you can fundraise and walk where you live on June 17th in support of CDKL5 Canada.

3. Make a donation. Please make a donation. All donations (corporate or personal) will receive a full charitable tax receipt. This is also the link to make a donation https://www.canadahelps.org/en/charities/cdkl5-canada/p2p/trailofhope/

The Trail of Hope is a walk of hope for their daughter Brynn and others living with CDKL5 Disorder. As a result of this diagnosis, Brynn is unable to stand or walk, she is completely nonverbal, she suffers through multiple seizures daily, and an array of other symptoms like gastrointestinal issues, breathing difficulties, the list goes on.

CDKL5 Canada is the charitable organization that funds research towards treatments and a cure, while also providing a community of support for CDKL5 families in Canada. Like most charitable organizations, they have struggled to fundraise due to Covid-19 but because CDKL5 is so rare, and they rely on a small board of parent volunteers, they are even more negatively affected.

Natalie is encouraging the community to join them on the trail (socially distanced) for sections of the walk or to cheer us on at access points. We plan to start in Collingwood at 6am and end up in Meaford harbour by 6pm!

Thank you in advance for your support.